time to explain

Sorry if I freaked some of you out with my last post! I was in a bit of an emotional state and that is not a good time to post a blog!

J had Guillian-Barre Syndrome when he was 17, which is very rare. Of the few people who get this only 7% get it again, unfortunately J falls into that 7%. This is the strain of GBS he has. The doctors made some pretty brutal statements and at this time we are having a hard time believing it and frankly don't accept.

We are waiting for the specialist to call us when J can start treatment. This all requires that he stay home and we are not sure if he has worked enough hours for him to collect disability insurance, hence me having to be ready to get a job.

We are believing for a miracle and complete healing and for the financial end to work itself out, thank you for standing with us!!

13 comments:

Elle*Bee said...

Oh Lala! I don't know what to say! Please know that my thoughts and prayers are with your family right now. He seems to have come through it once before - altho' I'm sure it wasn't easy. I'm praying that he will again. My situation is a bit different. Dear Hubby was diagnosed with coronary artery disease when he was 34, and had triple bypass at 36. He has a genetic pre-disposition for very narrow arteries so a little blockage in one person could be life threatening in him. His cardio doc referred to it as a 'fatal disease' (gee, thanx!). His seems to be under control, but it is tough going through life with it looming in the back of one's mind. Although, this is now in the forefront of your mind. If you ever want to email or talk privately, just to vent or cry, let me know. ((hugs))

holli said...

Lala.. if anyone's faith can bring them through - I know yours can. My uncle had a complete heart transplant and this was after all sorts of complications. So much prayer and faith had to bring that family through it - the same faith that brought Britt through her rare form of cancer. I agree - J has been through it once, he can do it again. I will pray with you for complete healing. I am so sorry. If you need to email me - if you can think of anything. I am here. big hugs. And then more hugs.

Cool Mama said...

Hey Lala....we're praying..and believing that God has a miracle in the near future for you! I know it's not coincidence that the top guy for this syndrome just happens to live in your city! How's that for God arranging things eh?? Remember to keep breaking of those 'word curses' that the doctors are speaking over J ! I believe in doctors, but they are not the finale word on anyone's health - Jesus is! Love you, lots!!

The Flip Flop Mamma! said...

Oh Lala, I'm praying for your husband and your family. I'm sorry you are all going through this. I will pray for a miracle also, we know these still happen, for we have a powerful and mighty God!!

Lynanne said...

I'm so sorry. I don't know what to say. You are in my thoughts/prayers. Take care!

theresa said...

Lala, your family is in my prayers. I'm sorry you are going thru this.

Shash said...

Hey La,

I know you guys are going to be ok. It's ok to feel scared but remember and remind the rest of the family that God is bigger than GBS or CIDB. His name is above all other names. Jehovah Jireh = the God who heals. He's the same yesterday, today and forever.

I know you know all this but it is still good to say outloud, as a refresher to your soul (your mind, your will & your emotions).

We'll be praying for you at church tonight.

Dawn said...

Thanks for stopping by my WW in the midst of your stressful time - maybe it helped! I am trusting God that he will get really good help and will have enough disability time.

Kristen said...

"All Things work together for good to them that love the Lord". Praying for you!!

Morning Glory said...

Oh Lala, I'm so sorry. I'm offering up prayer on your behalf and I know the Lord will sustain and help you. I know from experience that He is there beside me all the time.

Heidi said...

I followed a link from Holli's blog over here. I skimmed your blog and then I saw i, GBS. My Mom had GBS when I was about 3 or 4. I don't know about the certain strain or anything, but if you could ever use an ear from someone who has been through something similar and still dealing with the effects contact me anytime. mowerman3@gmail.com lol it's hubby's account but we use it as our catch all kind of thing. I don't give my main one out as easily as it uses my last name. I check it often, feel free to email anytime.

Heidi~a friend of Holli's

Jenmomof4 said...

La La, I am so sorry for what you are going through!! I just finished reading everything and the links to GBS. I know that you are strong person and you will do whatever it takes for your family, However if you need anything please email me or leave me a comment. I feel like I know you and you are Blogger friend!! You are in my thoughts and prayers!! Jennifer

mom of 2 said...

Oh no...I am so sorry to hear that! My thoughts and prayers will be with you and your family!!