I looked on line last night and found some really helpful information on CIDP. They also have some diet information that I told J all about and am going to start implementing. For instance, organic honey is very beneficial! so is green tea. We are going to start eating more fish and whole grain breads/wild rice, that sort of thing. I don't eat white bread but it is J's favorite! he loves thick peanut butter and jam/banana sandwhich's! so now he has to have them on whole grain brown bread!
They also gave an interesting statistic - direct quote "Although 95% of patients will show initial improvement following immunosuppressive therapy, the relapse rate is high. In the series of Dyck et al, only 64% of 53 patients were improved or in remission and able to return to work, 8% were ambulatory but unable to work, 11% were bedridden or wheelchair bound, and 11% died of the disease. Six percent died from other diseases. Dr. Albert Yen, " I believe J will be in the 64%!
We have been playing a lot of praise and worship music in the house and J said it works. He feels better being surrounded with hope!
He seems to be walking a bit straighter over the weekend and I was really encouraged when he said on Saturday that he wanted to get out of the house! yeah! so we went to Wendy's!! got to be budget minded now! and then got groceries at Costco, by the end he was definitely tired and I had to load the truck and get the girls to help unload. We also went next door last night for dinner and then we played Guesstures with all the kids (our other neighbors were there too) and J wasn't going to play but then he did, he got up and played! it was great to see him being active, it was heart lifting.
I want to deliver more resumes out tomorrow. There haven't been too many adds in the paper for what I am qualified for. I just have to keep trying though. I am feeling better too, not so down. It is funny how tired I was this week too, I am not sure if it was because of watching him sleep on and off all day or if I was fighting depression myself. I hate being tired like that.
The girls are all doing well. Morgan is going to be turning 13 in March and I can hardly believe that I am going to have a teenager soon! I haven't really thought of what to do for her birthday. I am hoping our financial situation will be all back to normal by then. I had wanted to take her to a spa/hotel over night, just the 2 of us. She wants to have a smallish party and go bowling, I haven't mentioned the hotel thing yet. I was thinking of buying her some makeup, we were allowed to officially wear makeup when we were 13. Ok this all just scares me! a teenager???!!! how did this happen???? where did the time go? how did my baby become a teenager??? am I old enough for this? doesn't feel like it! Our church has invited her to the youth thing on Friday night, she looked so old standing there talking to the lady about it getting all the details. She can still go to Sunday School but she opts to sit in the service, so grown up........ahhhhh deep sigh! Any suggestions for what you did for your child's 13th birthday? or what you did that was special for yours?